|
Andy,
I'm glad you'll have an in-person appointment. There's only so much they can do with video appointments.
I'm also glad that you've been treated so well by your health team. From your forum signature, it's clear that your wife is an important part of your support team too!
As a former GP, you presumably understand the tests, the reasons for them, and will be able to work with your physicians to interpret the results and consider the appropriate treatment.
PNH is the concern now, with your long-term MDS lurking in the shadows. PNH is much better understood now than when you were first diagnosed with MDS, and of course there are now drugs for PNH treatment.
Please let us know how it goes.
__________________
Founder of Marrowforums and caregiver for my wife
|