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Old Thu Jun 5, 2014, 01:30 PM
kgtuck kgtuck is offline
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Join Date: Mar 2011
Location: Sylva & recently Waynesville, North Carolina USA
Posts: 47
Dacogen, 'my wonder drug'

Today marks 5 years of success with Dacogen. My blood counts continue to be well within normal limits (except for the wbc bumping up and down due to the treatments)! My diagnosis was MDS refractory anemia, RAEB II, with 10% blasts and no chromosome abnormalities.

I hope my celebration will give others encouragement who are just being diagnosed and/or beginning treatments. Because this drug (& Vidaza) are methyltransferase inhibitors, the side effects are very minimal. And, if transplant isn't an option, these drugs can give us hope for a normal life for years!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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