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It was a tough decision
In less than 6 months I went from a very minor pre-MDS to MDS-RAEB-2. I am on a clinical trial for AG221 which reduced my blasts from 13% to 3%. ANC .2, Platelets 36, Hemoglobin 10.1. The doctors were not expecting the CBC numbers to improve.
I have had the opinions of 5 doctors. They all agree that my MDS came on rapidly so relapse would likely be fast also. Even the clinical trial doctor who's vested interest to keep me on the experimental drug all agree I should have a transplant soon. I mentioned people who have been in remission for years. They say that is highly unlikely for me. They say that for me remission from any drug would be in the 3 month range.
Yesterday I have a pre-transplant physical and mental exam. I passed so the transplant will be in a couple of weeks. It was a tough decision. As I see it, it was the only decision for me. The betting odds among the doctors are a 30 to 50% chance of near normal longevity. I am 73 and healthy. It is too early for me to give up.
Ray
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