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Thanks Neil.
Yes, it's possible that the dismissal of my first attack of haemoglobinuria was due to the lack of effective treatment at the time.
I'm very aware of the privilege of living at a time when illnesses are treatable. I think back to the care that was available to my parents' and grandparents' generations and feel quite humbled.
Best wishes
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Andy, 68, retired GP, husband of Charlotte for 45y. MDS diagnosed 2001, treated with daclizumab in 2004. Now dveloped into PNH.
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