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Old Thu Mar 3, 2022, 05:11 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Yes, it is more typical for patients to have AA that can be treated and come back later in life as PNH, and some persons present w/ both AA and PNH. I have met and have been told abt other patients by hematologists and rare disease specialists. In respect to stem cell transplants, it is my understanding that the usual age cut off date in the U.S. is 70. Obviously, someone's overall health absent of their disease is important. A transplant is a huge commitment, but having a good attitude helps.


Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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