Hi Donna,
You really have wonderful doctors
and have got very good treatments unfortunately without response. I wonder how old you are and if you have any other diseases.
kind regards
Birgitta-A
75 yo, dx MDS Interm-1 2006. All cell-lines low and transfusion dependent from dx. Supportive treatment until 2010 when I started to take Thalidomide with good response. Now responding to Revlimid. My HGB is 14,5 so I am starting to worry about deep vein thrombosis.