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Sorry you have such a tough road - hopefully the fatigue will get better and maybe they'll figure something else out over time. Until then enjoy life as best you can - you're in my thoughts and I wish you the best. paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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