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Old Wed Feb 4, 2015, 08:24 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
So glad you have posted, Chirley. I was beginning to get worried about you.

I'm really sorry that you've had such a tough time lately. You are right about the difficulty of being objective when it's all happening to you. I hesitate to give any advice since your current situation is so different from mine. However after reading your email I wonder if you should see if you can get through this infection and your next copper treatment before you make any decisions about further treatment. I can imagine that you will be feeling quite depressed about being in hospital so long this time. I'm sure I would be!

Hang in their dear girl. You are in my thoughts and prayers.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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