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Old Tue May 3, 2016, 03:21 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Mblackmon,

Welcome to the forums.

An MDS diagnosis is a serious matter, but you are apparently among the people who are able to live with the disease, meaning that your counts have been low but you've been able to tolerate them at that level for a year.

Aranesp is one way to boost your hemoglobin, as would whole blood transfusions. They each have their downsides as long-term treatments, since aranesp can produce a number of side effects, and transfusions can lead to a buildup of excess iron. But either could give you what you need to keep on keeping on.

What made you decide to seek more support? Has your condition changed, or are you just trying to gather information about treatment choices?

Do you have a good hematologist who you can work with? Do you have family and friends who to support you too?
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