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Old Mon May 9, 2016, 12:58 PM
riccd2001 riccd2001 is offline
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Join Date: Aug 2010
Location: Burlington,Ontario,Canada
Posts: 186
Keep a record...

Some simple advice from a long-ttime patient who has had over 365 prbc transfusions.
Keep a record of the so-called units or bags. None are the same. They have different volumes ( ml), donation and expire dates. Keeping an eye on trends you may find certain things affect you differently.

And of most importance, ask your doc if pre-meds will be essential for you to receive only compatable blood (that's all about antibodies that you may develop or already have).
When you reach about 20 units, you will need to discuss iron-removal choices.
Good luck, and all the best with your decisions.
__________________
Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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