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Transfusions and Iron Overload Blood and platelet transfusions, iron testing and treatments |
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#1
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![]() FDA now says MDS will not qualify for Ferriprox treatment as alternative to Exjade or Desferal.
![]() http://www.mdsbeacon.com/news/2011/1...omes-patients/
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30% ![]() ![]() |
#2
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![]() I have had 277 units of blood, Ferritin level was off the charts. Have been taking ExJade for 5 years, can only take one daily, even the one sometimes cause an upset stomach. On 10/17/11 the level was down to 2854, it does take a while, but it will come thru. I've had MDS for 7 years, transfusions started slow only had 4 the 1st year,now I'm up to 2 units every 2 to 4 weeks, it varies, most of the time it's 2 weeks. I worry more about the iron levels than I do the MDS. Other than the transfusions the only thing I take is 40,000 units of Procrit one a week, I inject my self. I have no idea what my blasts are or anything else. The only things I pay attention to is my Crt level and the ferritin. I don't worry about it, because I can't change any thing. That's the only advice I can give. worry never changed anything. I have had two Triple A operations, my appendix out twice, Arnold Chiari Malformation, 4 heart stents, I have Chron's as well. So when I say don't worry, don't. I hope everything works out for you, I know it's hard but don't let it get you down. I'm 79 years old now and I welcome each day as a marvelous event
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#3
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Wow, you are so inspiring. And your advice is worth millions. Thank you --
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks. |
#4
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Transfusions and iron overload
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Confused with Bone marrow report | teo | MDS | 168 | Mon May 5, 2014 09:20 AM |