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#1
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Crazy shoulder/arm muscle pain
I had this in the spring and went for PT...was feeling better last few months...all of a sudden, here it is again.
Can't fasten bra ![]()
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly |
#2
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Cheri
Quote:
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Susan Patient, 58, MDS, UPDATED 9/13 Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW - |
#3
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And Neupogen sometimes has that effect too.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks. |
#4
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Cheri, I would check with an orthopedist before assuming it is related to MDS or medications. Of course it could be, and I can't speak to that, but I had adhesive capsulitis for a while, and what you're describing sounds a lot like that.
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine |
#5
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Cheri,
Muscular and joint pain can be a side effect of Vidaza. I have some during treatment week but never severe. Do you get injections in your arms? My shots are all in my stomach. Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com Last edited by mausmish : Fri Jun 10, 2011 at 10:29 PM. Reason: Correct typo |
#6
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![]() Hi i'm currently on ciclosporin and have had exactly the pain you describe for the last six months following atg for SAA. Not done anything about it but today could not hold a knife in my hand and cut my food. If you find out anything can you post please. Many thanks and hope it gets better.
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