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MDS Myelodysplastic syndromes

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  #1  
Old Sat Jan 26, 2013, 11:17 PM
guitpic guitpic is offline
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Join Date: Jan 2013
Location: Minnesota
Posts: 2
New just to say hello

Hello All,

I'm a 64 year old caucasian male, diagnosed with MDS about 4 years ago. I have had anemia since 1999 but it wasn't until 2008 that a local Oncologist figured out what I had.

My disease has been described as moderate by the oncologist I see. My hgbn has dropped as low as 8.8 but has remained above 11.5 for a while.

I have diagnosed issues with number, size, shape and function in almost all blood type cells...part of MDS I guess. The oncologist I see also thinks I might possibly have mild Gilbert's syndrome as well.

My symptoms have included, fatigue, shortness of breath, dizziness, heart palpatations and frequent skin/nail bed infections. I seem to react to pain meds of any kind and can't drink caffinated coffee or will get sick(chest pressure; nausea).

In my past career, I have worked with heavy duty solvents and other chemicals. I've also had some radiation scans for intenstinal issues and have received heavy doses of intravenous antibiotics in my past.

I have been reading this forum for some time but this is the first time I have posted.

My hope is that by reading what others are going through, that I will learn more about this disease and mostly, how to cope with it.

It's been good to read what some of you have posted and I'm grateful for this forum.
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RL, age 64, anemia since 1999, diagnosed MDS in 2008..currently no treatment...Minnesota USA
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Old Sun Jan 27, 2013, 12:34 PM
gramous gramous is offline
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Join Date: Apr 2012
Location: belgium
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hello guitpic...
Welcome on this forum.
good to hear that you're fine with your mds since a long time. What's your mds's type?
béné
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
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  #3  
Old Mon Jan 28, 2013, 12:34 AM
guitpic guitpic is offline
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bene,

Thanks for the reply. I'm not sure about my type of MDS but will do some checking.

That said, I don't even know how I would go about finding out what type of MDS I have?

Tx
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RL, age 64, anemia since 1999, diagnosed MDS in 2008..currently no treatment...Minnesota USA

Last edited by guitpic : Mon Jan 28, 2013 at 08:03 AM.
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