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New just to say hello
Hello All,
I'm a 64 year old caucasian male, diagnosed with MDS about 4 years ago. I have had anemia since 1999 but it wasn't until 2008 that a local Oncologist figured out what I had. My disease has been described as moderate by the oncologist I see. My hgbn has dropped as low as 8.8 but has remained above 11.5 for a while. I have diagnosed issues with number, size, shape and function in almost all blood type cells...part of MDS I guess. The oncologist I see also thinks I might possibly have mild Gilbert's syndrome as well. My symptoms have included, fatigue, shortness of breath, dizziness, heart palpatations and frequent skin/nail bed infections. I seem to react to pain meds of any kind and can't drink caffinated coffee or will get sick(chest pressure; nausea). In my past career, I have worked with heavy duty solvents and other chemicals. I've also had some radiation scans for intenstinal issues and have received heavy doses of intravenous antibiotics in my past. I have been reading this forum for some time but this is the first time I have posted. My hope is that by reading what others are going through, that I will learn more about this disease and mostly, how to cope with it. It's been good to read what some of you have posted and I'm grateful for this forum.
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RL, age 64, anemia since 1999, diagnosed MDS in 2008..currently no treatment...Minnesota USA |
#2
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hello guitpic...
Welcome on this forum. good to hear that you're fine with your mds since a long time. What's your mds's type? béné
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y. |
#3
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bene,
Thanks for the reply. I'm not sure about my type of MDS but will do some checking. That said, I don't even know how I would go about finding out what type of MDS I have? Tx
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RL, age 64, anemia since 1999, diagnosed MDS in 2008..currently no treatment...Minnesota USA Last edited by guitpic : Mon Jan 28, 2013 at 08:03 AM. |
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