Home         Forums  

Go Back   Marrowforums > Regional Discussions > Your Local Area
Register FAQ Search Today's Posts Mark Forums Read

Your Local Area Connect with people in your city, state, province, or region

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Mar 7, 2009, 11:36 AM
Mike Conlon Mike Conlon is offline
Member
 
Join Date: Mar 2009
Location: Zelienople, Pa.
Posts: 32
MDS survivors (Pittsburgh, Pennsylvania)

Dx May, 2007, total remission May, 2009. May, 2009 is third anniv. of approval of Dacogen in U.S. I continue to recieve treatment at Hillman Cancer Center in Pittsburgh. To my knowlegdge one local patient extended treatment to a twelve week cycle, this didn't work well and returned to eight week cycle which is where I am currently. I'm interested in talking to other survivors and comparing situations such as treatment cycles, prognosis from their doctors, side effects, etc.
__________________
Mike Conlon
Go Steelers(Seven is Heaven)
Reply With Quote
  #2  
Old Tue Jan 26, 2010, 01:13 PM
Vince R Vince R is offline
Member
 
Join Date: Jan 2010
Location: Russellton,PA, USA
Posts: 9
Smile Vince R

Hello Mike,

Not a survior yet but pray to be soon
I just joined the forum on 1/25/10
I was happy to see you thread on surviving MDS.
I have had MDS (rarrs) going on five years now.
My reds are messed up, in 2005 my Hemaglobin was in the middle 11's
now I'm fluactuating in the 8's.
The only treatments so far is Procrit and now Aranesp both help to produce
more red blood cells.
My doctor is in the upmc group Dr. Sun mentioned supressing my immune system, they think it may be spiked, seen by a flag marker in my DNA
I very interested in your treatment. please contact me.
My e-mail is vin50@hotmail.com

God Bless You

Vince
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 03:51 PM
One-day Patient and Family Forum in Pittsburgh, Pennsylvania, April 18, 2015 Marrowforums News and Events 0 Mon Apr 6, 2015 04:50 PM
Philadelphia Pennsylvania MDS Support Group bob weinberg Support Groups and Communities of Hope 1 Wed Feb 22, 2012 06:50 PM


All times are GMT -4. The time now is 01:23 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org