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#26
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hello everyone,
Sorry I have not posted in a while, I just wanted to give everyone an update on how things are going. As for my health, still no diagnosis ![]()
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JGOLF, 21year old femaie, not diagnosed yet, currently on cyclosporine and prednizone, and antibiotic. |
#27
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I'm glad your platelets seem stable and you are continuing.
Why isn't there a diagnosis yet? Was the last BMB a bad sample again? Has your hematologist given you some indication what it might be? I'm planning to run a drive this summer for Be the Match. They are really good at getting back to you when you fill out the form notifying them of your interest in running a drive on the website. They emailed me back and forwarded my info to the local chapter where I live in the US. I'm pretty excited about doing it. A website raising money and selling your art is a great idea, I know that it costs money to run the genetic testing for bone marrow registry. So happy you can stay positive. Thanks for updating us. Catherine
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25F, Dx RCMD MDS 1/2012, on wait and watch for who knows how long |
#28
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Hi JGolf, good to hear from you. Be the Match needs so much more publicity! Your ideas are wonderful. So glad you're feeling better and your numbers are holding steady. Sorry to hear about your liver numbers...I hope they figure that one out soon. Keep us posted.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks. |
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