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#1
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Very High Risk MDS and no transplant.
My mother is newly diagnosed and doesn’t meet criteria for a transplant.
Does anyone have experience they could share in this situation? We don’t know what to expect. |
#2
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I'm sorry I don't have any links for you but I have read about clinical trials for patients in your mom's situation. Perhaps you can do an internet search and see if you can find them, or someone else may have the links and will post them.
ETA: Here's a link to the MDS Foundation page listing clinical trials you can check out. https://www.mds-foundation.org/clini...linical-Trials
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Joanne, 65F, 8/17 dx Primary MDS-EB1, Pancytopenia; 6/19 MPN w/CMML characteristics, dr calling it AML even w/blasts <20%; 7/19 Induction w/Vyxeos resulting in complete remission with incomplete blood count recovery. Last edited by JoMac53 : Tue Dec 18, 2018 at 05:45 PM. Reason: To add link |
#3
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My husband started dacogen in early May 2018. After 7 cycles all his cbc counts have improved. He also gets procrit and zarxio for hgb and white count. Dacogen has made a great difference. It is worth a look .
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#4
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Hi, I’d be happy to share some optimist news. My mother was diagnosed in May 2014 at the age of 78 with MDS high risk, and she just turned 82 in January
![]() There is therefore life after diagnosis. I hope and pray that your loved one is as fortunate to see a lot more happy days. Best wishes, Annette |
#5
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Thank you
Thank you all for your responses and Annette what an amazing story about your mom!
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