Expanded Disease Information

[Marrowforums]

Marrowforums is pleased to announce expanded descriptions of aplastic anemia, MDS, and PNH that can help you learn more about these bone marrow failure diseases: what's happening to your body, disease terminology, how the disease is identified and classified, treatment choices, and how to help yourself.

Disease information pages:

Aplastic Anemia

MDS - Myelodysplastic Syndromes

PNH - Paroxysmal Nocturnal Hemoglobinuria

These pages cover the following topics:

Aplastic Anemia

• Symptoms of Aplastic Anemia
• Causes and Risk Factors
• Diagnosis of Aplastic Anemia
• The Mechanism of Aplastic Anemia
• Types of Aplastic Anemia
• Treatment of Aplastic Anemia
• Clinical Trials
• Coping with Aplastic Anemia

Myelodysplastic Syndromes

• Symptoms of MDS
• Causes and Risk Factors
• Diagnosis of MDS
• The Mechanism of MDS
• Classification of MDS (see also our MDS Classification Tool)
• Treatment of MDS
• Clinical Trials
• Coping with MDS

Paroxysmal Nocturnal Hemoglobinuria

• Symptoms of PNH
• Causes and Risk Factors
• Diagnosis of PNH
• The Mechanism of PNH
• Treatment of PNH
• Clinical Trials
• Coping with PNH

As patients and caregivers we may find it hard to understand a complicated and serious disease, one we may never have heard of before diagnosis, and the medical lingo we're hearing. Educating ourselves takes time and effort but it's very worthwhile. The more we learn, the better we are able to be full partners with the doctors on our medical teams, and to advocate for the best possible care. We encourage you to take advantage of these and other information resources, including the free educational materials available from the Aplastic Anemia & MDS International Foundation (AA&MDSIF).