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#1
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![]() Anybody here from the Pittsburgh area? Just recently moved to be closer to my family during this stage in my life. I'll be getting treated at West Penn hospital. I was curious about people's experience. If any....
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Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far. |
#2
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![]() Hi Kamara,
I don't know what all the initials in your post mean but I have Aplastic Anemia with PNH. I am near Reading ,PA. My thoughts are with you. Yvonne |
#3
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Hi Kamara. I had a BMT for PNH 4 yrs ago. I had symptoms for a very long time before then, but I ignored them until I got to the point where my HGB was abt 7.4! I have some fairly mild GVHD, but it has been well managed by my doctor and associated medical staff. A lot of tests, a lot of meds and a lot of appointments, but both my doctor and I agree that my experience has been good, all things considered. Please let us know how you are doing.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD. |
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